Assistance Needed
with UBA5 Research
We're seeking help with UBA5 Research today! A quick 15 to 30-minute call is all that's required. The aim of this survey is to gather the essential data that UMass needs for the Natural History Study. This information will support the preparation of the Pre-IND (Investigational New Drug) section to be submitted to the FDA for approval. If you are interested in participating please reach out to Danielle.Kokoski@umassmed.edu
UBA5 + RARE-X
We are thrilled to announce that we have been chosen as a launch partner for RARE-X. RARE-X is dedicated to revolutionizing rare disease by providing clinicians, researchers, and drug developers with access to "The Right Data at the Right Time," fueled by patients' data. This parent/patient reported data collection will complement current efforts with UBA5 Research.
To learn more about RARE-X, click
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Register YOUR UBA5 Warrior TODAY!